Wednesday, July 28, 2010

Jake's Quilt Square

During the Transplant Games, we will have the opportunity to pin a square on Patches of Live: the National Donor Family Quilt, which commemorates organ donors. In Madison the entire quilt, consisting of over 32 panels, will be on display. Everyone is invited to the Quilt Pinning to see new quilt squares added to the quilt . As each new Quilt patch is “pinned” to the Quilt, donor family members will have an opportunity to share a few words about the meaning of their Quilt patch. Today I finished a patch for Jake...


We sang "Twinkle" to Jake frequently, with Ben's help. Just before we all said good bye to him (not only Andy and I, but a room full of our closest family and friends), we sang this to him, one last time. During his life, we frequently called him our little star, unaware of just what a hero he would become. We are very happy with the end result, and cannot wait to place it on the national quilt.

Wednesday, July 21, 2010

The countdown is on!

Only 10 days until we arrive in Madison for the Transplant Games! There is no way to describe how exciting, nerve wracking, monumental and thrilling this whole episode in our lives is. Andy and I are a little anxious about the logistic side of things (I haven't flown since May of '01, and Andy since '96 or so, and never with kids!!), but we are so very excited to be taking part in this amazing and emotional event. At the games we'll be able to attend the events themselves, cheering on the Upstate New York team, made up of transplant recipients and living donors from the greater Rochester region, attend donor family seminars, and surround ourselves with the love only those touched by organ donation can truly comprehend. Oh, and did I mention, we are meeting Beckham? YES, we are meeting BECKHAM! Andy and I will be able to meet, and, if we're lucky, even hug, the little man who carries Jake's heart. We will also get to meet Kim, Nate and big sister Gwen, an experience we are immensely looking forward to. I know I already posted about this when it was established that the Kidney Foundation would help the Scadlocks get to the games, but now that it's almost upon us the realization is sinking in. We have been inspired by the Scadlocks strength and amazing love for one another since we first discovered their blog in January of 2008, when Beckham was less than six months old and our own loss was still a fresh wound. They are remarkable people and I cannot wait to share this experience with them.

The first day we are in Madison will prove to be a trying and wonderful one. We arrive around 11am, but cannot check into our room until 3pm (typical). At 2 I have to be at rehearsal for the opening ceremonies, where I can practice with the five piece band I am performing with. Then at 3:30 we will meet the Scadlocks (absolute highlight of the day!). We have to be at the Coliseum at 6 to get ready for the opening ceremonies, which start at 6:30. Phew! What a day! I'm slightly worried about my performance. I heard or read somewhere that there are around 7,000 athletes at the Games - that's to say nothing of donor families, athletes families, press, staff, etc... I've never performed before more than a few hundred people! And to top it all off, they want Beckham to be on stage with me! This is so exciting, but, in the same breath, I'll be having a hard enough time keeping it together even if Beckham isn't standing there with me. Hopefully I'll manage to get through it without totally botching this amazing song.

Sunday, the second day of the games, is Beckham's third birthday! On Monday there is a Donor Recognition Ceremony, for which I was also asked to sing. I chose Faith Hill's "There You'll Be." I am, thankfully, fairly early in the program for this ceremony. At some point while we are there there will also be a quilt pinning ceremony. Andy and I are still trying to design and execute a quilt square in Jake's memory to add to the national quilt. It should prove to be an action packed trip, but luckily we can always go back to the hotel and take a break (there's an indoor pool, so the boys will be in their glory!).

I want to take a moment to thank everyone that has supported us over the last (almost) three years, and especially those that helped with our fund-raising efforts this spring for the trip. We are particularly thankful to the Odessa-Montour Interact Club, which raised $500 to help us with our airfare and expenses. Andy and I are so blessed to have such amazing people in our lives, from our work place, to our friends, and our family. I promise to get lots of photos uploaded upon our return!

Thursday, July 15, 2010

Trip to Canada 2010

The four of us went up to White Lake to spend some time with my parents at their camp site last week. A great time was had by all! What a change from last year for Alex, who couldn't even walk at the time. He spent a lot of time running around between my parents' place and the Platts' across the way, playing baseball and soccer (in his own way). He also discovered that he is very capable of swimming underwater (well, going underwater, not so much swimming per-say). He even comes up with a smile on his face. Ben had a great time at the beach and in the pool, using some water wings for the first time and doing great (along with some modified flippers and a kickboard, he was totally outfitted!). Andy and I enjoyed ourselves as well -- he got to go golfing with my dad and a couple buddies, while I went water skiing (for the first time in over 15 years!). I definitely felt that the next day. We also enjoyed some campfires, a boat ride, a surprise birthday party for a friend, great food, and, most of all, fabulous company.

Finally, we have arrived!

Feeding Grandma some gold fish.

Coloring on a rainy day.

Ben and Grandpa get some rest together.

Alex chilling with Grandpa.

Please ignore the beverage - it belongs to Daddy.

Ben peeking out of the pool!

Finally he's willing to jump in again!

Ben waits with me pre-water skiing!

The following is a series of photos of me attempting (and eventually managing) to water ski. Note that that dock in the first photo gets farther and farther away despite the fact that I wasn't staying up for more than a second (if I even made it that far!). Eventually I made a pretty long sweep, before crashing again in the dreaded back bay (it's very shallow and mucky, but thankfully it wasn't so shallow that I ended up touching bottom - I'd have been mortified!!). The last photo in the series is one of that fall. I was so excited that I managed to go so far though - and had the aching muscles the next two days to prove it!






Waiting to go on a boat ride with Billy.




Yes, that's rain at the other end of the lake... and it was coming our way!

Racing the rain back to camp!

The storm coming on our last night at camp. It made for a nice evening indoors.